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Statewide

Statewide Director - Donald Fillipps, MD

Statewide Coordinator - Holly Shenk, RN
Providing free educational materials and feeding supplies for families and health care specialists.

Mailing address:
Florida Cleft and Craniofacial Network
UF Department of Pediatrics
1699 SW 16 Avenue
Gainesville, FL 32608

Phone: 352-627-9326; Toll-free: 800-726-2029
FAX: 352-627-4564
E-mail: Florida Cleft and Craniofacial Network


Jacksonville

Jacksonville Cleft and Craniofacial Program

Clinical Director: Jeffrey Goldhagen, MD

Coordinator: Lida Sarnecky, RN

Mailing address:
820 Prudential Drive
Howard Bldg., Suite 412
Jacksonville, FL 32207

Phone: 904-633-0935
Fax: 904-633-0944
Email: Lida Sarnecky, RN

 


North Central Florida

Cocoa/Rockledge

Cocoa/Rockledge Cleft Palate Team

Director: Luann Pachkoski, MD

Nurse Coordinator: Lorna Wong, RN

Mailing address:
Children's Medical Services
2565 Judge Fran Jamieson Way
Viera, FL 32940

Phone: 321-639-5832
Fax: 321-504-2001
Email: Lorna Wong, RN

Gainesville

UF Craniofacial Center

Medical Director: Donald J. Fillipps, MD FAAP

Clinic Director: Ginny Dixon-Wood, MA, CCC-SLP

Clinic Coordinator: Holly Shenk, RN

Mailing address:
PO Box 100296
Gainesville, FL 32610-0296

Phone: 352-627-9326; Toll-free:800-726-2029
Fax: 352-627-4564
Email: UF Craniofacial Center

Orlando

No Cleft Palate Clinic at this time

Contact: Fina Bagwan, CMS office

Phone: 407-858-5555
Fax: 407-856-6573

 

South Florida

Ft. Lauderdale

Joe DiMaggio Craniofacial Program

Medical Director: Dr. Roman Yusupov, MD

Team Leader: Dr. Margaret Grell, MD

Program Coordinator: Bobby Brasher, ARNP

Mailing address:
4651 Sheridan Street, Ste. 150
Hollywood , FL 33021

Phone: 954-265-6314
Email: Bobby Brasher, ARNP

Miami

The Craniofacial Center at Nicklaus Children's Hospital

Director:Mislen S. Bauer, MD

Program Coordinator: Anna Pelligra, MSN, ARNP

Clinic Coordinator: Leyna Orta

Mailing address:
3100 SW 62 Ave
Miami , FL 33155-3009

Phone: 305-662-8237; Toll-Free: 800-662-8502
Email: The Craniofacial Center at Nicklaus Children's Hospital

 

West Palm Beach

CMS Cleft Palate Clinic

Director: Philip Colaizzo

Coordinator: Suzanne Coleman

Mailing address:
5101 Greenwood Ave
West Palm Beach , FL 33407

Phone: 561-881-5040 ext. 2247
Email: Suzanne Coleman


Tampa Bay

Fort Myers

CMS Cleft Lip & Palate Team

Director: Joseph F. Mazza, MD
Board Certified Plastic and Reconstructive Surgeon

Nurse Coordinator: Noreen Kurland, RN

Mailing address:
9800 South Healthpark Dr, Suite 405
Fort Myers , FL 33908

Phone: 239-433-6723 ext. 157; Toll-Free: 800-226-3290 (in Florida only)
Fax: 239-433-6739
E-mail: Noreen Kurland, RN

Sarasota

CMS Sarasota Cleft Lip & Palate Team

Director: Robert Shamsey, MD

Nurse Coordinator: Pamela Reimer, RN

Mailing address:
6055 Rand Blvd
Sarasota , FL 34238

Phone: 941-361-6250 ext. 4563; 941-316-4563
Fax: 941-361-6272
E-mail: Pamela Reimer, RN

Tampa/St. Petersburg

CMS Regional Nursing Supervisor (Tampa, St. Petersburg, Lakeland):
Heather Soechtig, RN

Tampa Cleft & Craniofacial Center

Director: Mary H. Pavan, MD, FAAP

Program Coordinator: Heather Soechtig, RN

Mailing address:
13101 N. Bruce Downs Blvd
Tampa , FL 33612-3803

Phone: 727-217-7853
Fax: 727-217-7923
E-mail: Heather Soechtig, RN

Tampa Nurse Coordinator: Jennifer Wixon, RN
E-Mail: Jennifer Wixon

St. Petersburg Cleft & Craniofacial Center

Director: Mary H. Pavan, MD

Program Coordinator: Heather Soechtig, RN

Mailing address:
Johns Hopkins/All Children's Hospital Outpatient Care Center
601 5th Street South
St. Petersburg, FL 33701

Phone: 727-217-7853
Fax: 727-217-7923
E-mail: Heather Soechtig, RN

St. Petersburg Nurse Coordinator: Taryl Crisp, RN, BSN
Toll-free (within FL) 800-336-1612
Email: Taryl Crisp, RN

Lakeland

Lakeland Cleft Palate Team

Director: William E. Ray, MD

Program Coordinator: Heather Soechtig, RN

Nurse Coordinator: Christie Dudeck, RN

Mailing address:
Central Florida Speech and Hearing Center
3020 Lakeland Highlands Rd.
Lakeland, FL 33803

Phone: 863-413-3580, ext 150
Fax: 863-413-3597
Email: Cristie Dudeck, RN


West Florida

Pensacola Cleft Palate Team

CMS NW Region

Director: Aaron Wallender, DDS, MD

Nurse Coordinator: Janie Young, RN

5192 Bayou Blvd
Pensacola, FL 32503

Phone: 850-484-5040 ext. 1226
Fax: 850-484-5189
Email: Janie Young, RN


Florida Family Support Organizations

Information Content: All materials provided by the listed websites are for information purposes only and not for medical advice.

Florida Cleft Palate-Craniofacial Association: www.floridacleft.org provides information for professionals and families about team care in Florida, as well as referrals for parent support resources.

FACE of Sarasota (Friends for Aid, Correction, and Education of Craniofacial Disorders.) Tel: (941) 955-9250

Florida Children’s Medical Services and Child Protection Teams:www.cms-kids.com
Twenty-two teams, several with satellite offices, are available throughout the state to provide specialized assessments and services to child victims and their families. Services provided may include: medical diagnosis and evaluation, medical consultation, specialized interviewing of suspected child victims, family psychosocial assessment, nursing assessment, psychological evaluation, and multidisciplinary staffing.

Florida Department of Children and Families: www.state.fl.us/cf_web
State organization helping with food stamps, possible housing, and temporary cash assistance for needy families (TANF)

WIC of Florida: www.doh.state.fl.us/family/wic
Federally funded nutrition program for Women, Infants, and Children. WIC provides the following at no cost: healthy foods, nutrition education and counseling, breastfeeding support, and referrals for health care

Family and Community Outreach: http://www.fldoe.org/familybr
Department of Education programs to improve student performance for at-risk students who are low-performing by providing additional learning opportunities.


National Support Organizations

AboutFace International: www.aboutfaceinternational.org and
AboutFace USA: www.aboutfaceusa.org
Organizations providing emotional support and information to people with facial differences and their families

American Cleft Palate-Craniofacial Association: www.acpa-cpf.org and
Cleft Palate Foundations: http://www.cleftline.org
National Organizations serving healthcare professionals and patients and their families, operating the Cleftline: 1-800-24-CLEFT, and producing free publications. The Cleftline is an 800-toll free service providing information to callers about clefts and other craniofacial anomalies. Callers can request information about cleft palate/craniofacial teams and parent-patient support groups in their local region.

AmeriFace: Debbie Oliver, Executive Director, debbie@ameriface.org
Websites: www.ameriface.org, and www.cleftadvocate.org
Phone: (888) 486-1209, (702) 769-9264
Fax: (702) 341-5351

Children's Craniofacial Association: www.ccakids.com
Organization empowering and giving hope to individuals and families affected by facial differences.

Birth Defect Research: www.birthdefects.org
Organization providing information to parents and professionals about all kinds of birth defects, resources, support groups, and environmental exposures.

Binky Patrol: Comforting Covers for Kids: www.binkypatrol.org
An organization that makes blankets and gives them away to children in need of comfort, including those who are ill, abused or experiencing trauma of any kind.

Cleft Advocate: www.cleftadvocate.org
Provides information to people with facial differences and advice for families who are fighting insurance denials for their medical care.

Exceptional Parent: www.eparent.com
Website and magazine about parenting a child or young adult with a disability or special health care need.

FACES – The National Craniofacial Association: www.faces-cranio.org
Organization assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.

Friendly Faces: www.friendlyfaces.org
A network of resources for individuals with facial differences, their parents, families, and friends.

Kidpower, Teenpower,Fullpower International: www.kidpower.org
Organization helping people of all ages to stay safe, act wisely and believe in themselves.

March of Dimes: www.marchofdimes.com
Organization dedicated to “improving the health of babies by preventing birth defects and infant mortality” through research, community services, education, and advocacy. It also provides individual genetic information to callers.

Stop Bullying: www.stopbullying.gov
Government supported program helping to understand how to discuss bullying and bullying prevention in a way that would make sense to young people, recommending ways for adults to take a stand against bullying. Website includes personal stories of people on how bullying has affected their lives and the lives of their friends and family members.