Florida Cleft and Craniofacial Network is a statewide program achieved through the partnership of the Children's Medical Services of the Florida Department of Health, the University of Florida, families and other health care providers throughout the state. In the state of Florida there are currently an estimated 3,700 patients being served.
To assist professionals and the families who care for children born with craniofacial differences; to educate and empower them with knowledge and understanding of the needs of children with cleft lip, cleft palate and other craniofacial conditions.
Florida Cleft Palate-Craniofacial Association will hold the next annual meeting January. Please visit the FCPA website for more details. This year offering family break out sessions.
Organization Deliver the Dream - "Helping families heal...one retreat at a time" is inviting families who experience serious illness or crisis to regain strength and mend spirits. Please use this great opportunity and turn in your applications as soon as you can!
CCA’s Annual Family Retreat & Educational Symposium is held each June to provide individuals affected by a facial difference, their siblings and parents an opportunity to interact with others who have endured similar experiences. The unique format of the Retreat allows families to share ideas, problems and solutions and make life-long friendships.
During weekends in the spring and fall, we welcome campers and their families to Camp! Parents and guardians and siblings are able to join the primary camper in all of the fun activities of Camp and experience the spirit of Boggy Creek. Parents and guardians can relax and find needed support among other families dealing with similar challenges. Siblings can participate in all of the fun, hosted by our volunteers and staff.
Children who were born with craniofacial differences are invited to attend Camp Boggy Creek in Eustis, FL.
Dates and more information coming soon!
The Ensuring Lasting Smiles Act (ELSA) would require all private insurance group and individual health care plans to cover medically necessary services resulting from congenital abnormalities. That coverage would include services and procedures for any missing or abnormal body part necessary to achieve normal body function, including teeth.
This bill would help families cover all congenital anomalies. According to the Center for Disease Control and Prevention (CDC), one in 33 babies in the United States is born with a congenital anomaly. Although medical professionals and surgeons are able to correct many of these problems, some insurance companies deny access to care by labeling the procedures as “cosmetic” or “non-functional” in nature. Will you join us in reaching out to legislators? When you register as an advocate, we’ll send you occasional emails about timely actions you can take to help us push this bill through to become a law. It could be an action as small as sending a pre-written email or as large as meeting with your state senator in person. Let’s show Congress what it means to get this bill passed! Click here for more information.